Haemophilia care in London ranks among the best in the world, and people travel from afar to benefit from it. But there’s always room for improvement. Haemnet is crowd-sourcing ideas that could mean excellent haemophilia care becomes an everyday experience for everyone with a bleeding disorder.
If you use NHS services in London, whether for yourself or someone you care for, it would be great to hear your experiences of:
Whether you travel into London to receive specialist treatment, or use services right on your doorstep, we want to hear from you.
It’s really easy. All we need you to do is to complete a short (just four questions) survey. Everyone who leaves a name/email address will be entered into a prize draw to win the latest 9.7-inch iPad model worth over £500.
Plus, for every survey completed, Haemnet will donate £3 to The Haemophilia Society; the only UK-wide charity for everyone affected by a bleeding disorder.
One winner will be chosen from a random draw of entries received in accordance with these Terms and Conditions. Deadline for entries is midnight on Sunday 4th June 2017. The prize draw will be made in The prize draw will take place from the closing date and Friday 30th June 2017 and the winner will be notified and announced on the haemnet and Haemophilia Society websites.
London 2020 is a comprehensive consultation designed to better understand current services and inform how London’s haemophilia services prepare for an uncertain future.
Over the next few years we’ll see a wider range of treatment options for managing haemophilia and other bleeding disorders. At the same time, the health service is under pressure to do more for less money. Current government policy is firmly geared towards supporting YOU to be more involved in managing YOUR OWN condition. So Haemnet wants to ensure the voices and insights of service users and their families/carers are heard when decisions are made about the future shape of London’s services.
London 2020 is led by a steering group of doctors and nurses from London haemophilia treatment centres working alongside patient and carer representatives.
The project is funded by Sobi and sponsored by The Haemophilia Society.
We understand how important your personal information is to you. All responses will be anonymised and, in accordance with the Data Protection Act, any contact details you leave will NEVER be shared.
Haemnet is a UK charity and international network for health care professionals who treat people with inherited bleeding disorders.
Haemnet works closely with all members of the haemophilia multidisciplinary clinical team and patient groups to better understand the needs of people with bleeding disorders, so that together we can ensure that excellent haemophilia care becomes an everyday experience.